Tag Archives: scared

No More Goodnight

“Ok G ready to be tucked in?”

“I’m good Mom”

“What?”

“I’m going to tuck myself in.”

“Oh ok, Do you need anything, A hug?”

“Nope, Mom I’m good.”

“Juice?”

“Got it.”

“Ok well I love you.”

“I love you too Mom.”

That is when my eleven year old daughter broke my heart.

Bedtime is a ritual. It’s a treasured ritual. It’s sometimes the only time of the day I get to talk to G about her day where she is unfiltered. It’s when we cuddle. We joke. We even have our own poem. It’s been our thing since she was two.

I treasure that quiet with her, don’t get me wrong,when I’m an exhausted mess I would be a liar if I told you before she could read I didn’t edit stories so we could both get to sleep faster.

But this is different.

She chose this.

As she is a lot of things lately.

Which I’m happy about… her finding her footing, being comfortable and independent. But for nine years good, bad or otherwise she has been my solar system.

So much so she has never met a single person I’ve dated. I can hear your collective intake of breath and tongue clucks. Read my blog series… it will make sense.

Maybe

That’s not why we’re here. Another time. Another time.

I want my girl to feel secure but does this mean she doesn’t need me?

We have started entering the stage of one syllable answers to questions, if I get answer. I embarrass her now. Before if I broke out in song in the car she would have sang along, now she yells for me to stop.

She also comments on things about me she didn’t before.

I’ll just say it- how I look. How I act.

So this is new for me,as before I was Mom. Gorgeous no matter what. Perfect no matter what. Allowed to tuck in no matter what.

Now she sees me.

I mean really sees me.

My stress, my hurt, my happy. My silly. She doesn’t always like what she sees and she tells me.

She asks me point blank questions about things she never did before.

Honest.

Brutal.

The reality of not tucking her in is more than just not tucking her in.

She’s growing up. While I am incredibly proud of who she is becoming. I selfishly still want her to need me. Is she still going to need me?

Will you still need me …When I’m 64? Beatles song… sorry…

I am sure she does and will. I am 47 and when I’m sick all I want is my Mom, but I think you get it.

Relationships between Mothers and daughters can be fragile things. I’m scared.

What if I screw this up?

And now you know my secret. While I hate I’m not tucking her in. It  does mean some extra quiet time for me. Our majestic golden doodle now sleeps with her. Less chaos at bedtime because she is handling it.

But it also means we are entering those years.

The ones we see on the Lifetime movies, talk shows, The Kardashian’s.

Ok, I don’t watch that… but ack!

I certainly don’t want to be a cool Mom.  I mean, raise your hand if you saw Mean Girls?

Whoa

But I want to be someone she can come to. That is my fear. Or at the least if not me someone else and know she can send them my way after.

I went to college with women who couldn’t talk to their Moms. I am friends with women who couldn’t talk to their Moms. I sometimes can’t talk to my Mom.

I don’t want perfect but I want a balance. Guys,I am so terrified you know who will goof it up. I know I keep saying that, but I think sometimes as a single Mom we wear our worry and sadly guilt like jewelry, heavy around our necks. We don’t mean to, but for me I know I made the right choice but it’s still a tough one and it still is hard on her.

Deep breath….

For now I am going to still ask if she needs anything about three times at bedtime.

Sneak in after she’s asleep and kiss her forehead.

Revel in the fact that even though my poor baby had the worst tummy bug ever the other night guess who she had tuck her in?

That’s right.. the same lady who sings Jump Around at embarrassing levels in the school pick up lane.

We got this Mama.

At least I think we do.

Big loves Mamas

 

~~Caprise

Single Mom of the amazing Dbl G
Teacher
Sometime DJ
T-shirt collector
Henry Rollins Middle Aged Punk Prom Date

Life With Trisomy 18

Last night I was thinking about what life would be life if Lillian didn’t have Trisomy 18. I thought back to her diagnosis and how devastated I was that she was going to be sick. I was scared about how our lives would change to accommodate for her needs, and even more scared of the thought of living life without her. I knew that one or the other would be how things played out. It’s been over 2 years since I became the mother of a medically delicate child. So last night when I was thinking about where we would be now if Lillian was “normal” I just couldn’t imagine life any other way.

So many times I feel like having a disability is looked at as a bad thing. We live in a society where different things are assumed to be bad. Being the mom of a medically delicate child has opened my eyes to so much. I, too, once thought that being differently abled or being the mom of a differently abled child would be absolutely awful. Life shook me around and showed me that is not. It’s hard. But it’s also crazy beautiful and wonderful and worth it. Life with Lillian has opened my eyes to an entirely different world—a better world.

The truth is, Trisomy 18 has shaped Lillian, and me for that matter. Lillian IS NOT Trisomy 18, but she does HAVE it. And it does make her who she is. She wouldn’t be the same without that extra chromosome. She is perfectly imperfect and I wouldn’t have her any other way. Would I take away the sickness? Sure. Would I take away the short lifespan? In a heartbeat. But would I change anything else about her? No. Having a child with different abilities is one of the best things that has ever happened to me. She has taught me so much about so many things. I could go on all day about it! She is THE sweetest, happiest child I’ve ever met. And I honestly don’t think she would have the same personality if she didn’t have Trisomy 18.

There are many many days that I say I “hate” Trisomy 18. And what I’ve realized is that it’s not Trisomy 18 that I hate. It’s death. And we are all going to die. So I choose her. I choose happiness. I choose positivity. And I choose to live despite the inevitable.

**If you are interested in learning more about Trisomy 18 or following Lillian’s journey, please check out her Facebook Page here https://www.facebook.com/trisomy18princess

 

Written By: Alivia Kraft

Brick Wall

The wall around my heart was built over decades. It was built with tears of frustration from not knowing what I did wrong.   It was built in my own blood to try to stop the emotional pain. It was built in fits of anger to block your words.  It was built with fear to avoid more damage from attacks. It was built to keep in my feelings because so many said they weren’t important.  It was built by my demons who told me I was unworthy so you might as well hide. It has been built by my warrior to protect me and ensure my heart would not shatter into a million pieces.

The wall has served its purpose for so very long. The wall has blocked so many attacks from people who said they loved me. The wall has protected me from the storms of anger that in the end were not about me.The wall has deflected the punches that were meant to knock me out. The wall has stood strong in the face of the demons who wanted me to stay down. The wall has given my warrior a safe place to regain her strength when needed. The wall has served its purpose and now it is time to start removing those bricks.

It is time to tear it down. It is time to be free of those bricks with their painful memories. It is time stand on top of the smashed bricks and be proud of all I have overcome. It is time to stand in front of the it, because I know I have the strength to fight back if needed. It is time for the demons to know that I am no longer afraid of them. It is time for the warrior to take on the world. It is time to trust. It is time to let down my guard and maybe, just maybe fall in love with someone who deserves me.  It is time to be free from the confines of my brick wall. It is time.

 

~ Kellie

Working each day to be the warrior and leader I know is within me. You can follow me at https://wordpress.com/view/leaderofthepacks.blog

 

My Brave Face

I’m going to be honest. I have started and restarted this blog about a million times. Ok maybe not that many. But enough. This is hard thing to put words to, but I’ll try.

In the last few weeks we lost Kate Spade and Anthony Bourdain to suicide. As supportive as people have been… it’s always followed up with why?
Why would someone who seemingly had it all take their own life?
If we could that answer we wouldn’t have to ask the question would we?
What I know is I have had two people who I was incredibly close to take their own lives.
Whenever this comes up in the news my brain buzzes. Not just for me but my family who have been trying to gently shut the door on something no one should ever have a door to anyway.

A few years ago a close family member took their own life, even worse it played out a bit on social media. But that is not my story to tell. So that’s all I will say.

However, this is my story…the very first man to ever break my heart took his own life. I carry so much guilt over it. It’s been years and I still carry the weight of what I could of, if anything done differently.He had months previous reached out to me as he had for years around Christmas. He missed me, he loved me, I was his biggest regret. As I always did, I curtly thanked him and said I did not feel the same.

Two months later he was dead. I read it about it on Facebook. Sometimes I really f*&$ing hate Facebook.

When news breaks about a celebrity taking their own life I start to feel sad, mad, wonder could I have done differently?

My answer is nothing. Depression & anxiety have a horrible ability of finding a hairline fracture and turning it into a full on break. The reality is not everyone wears their worries on their sleeve but it doesn’t mean they’re hurting any less.

It’s easy to question why. What I try to remember is what may seem like a grain of sand to me can feel like a whole beach to someone else.

There is a fantastic quote “misery is easy, happiness you have to work at.”
For some people that’s beyond true. Happiness is a lot of work.

I know that first hand. I am the Queen of coulda, woulda, shoulda. It keeps me awake at night. It gives me migraines. Thankfully I’ve learned – thanks to some pretty fantastic therapists- what I need to do when Ms. Coulda, Woulda, Shoulda are paying a visit.

It hasn’t always been that way and there are still days I give the ladies an audience. I had a huge wake up call from a friend, who by the way is no longer a friend. When I experienced my first deep downward spiral. She called me at work and told me she couldn’t be friends with me anymore because I was too depressing. Mind you I had just gotten dumped by a man who cheated on me with a co-worker. My heart was breaking in a million pieces, so yes I was probably a downer. I was SAD.

I got pissed. I was a Happy person. Even happy people can hurt. You are allowed to be sad. You are allowed to be heartbroken and if someone tells you otherwise. F them!  Seriously.

Also, please for all that is holy don’t be this person- “just get over it.” Wow just get over it. My marriage is ending, this was not my plan. I’m up to my eyeballs in debt, I’m now on my own with a 2 1/2 year old. But you betcha I’ll get right over it.

Why is it as a society we assign shame to sadness? Maybe that is the answer to that unfortunate question.

The same people who say reach out, say ask for help- can just as easily forget that is a really hard thing to do when you’re hurting. It’s easier to burrow, run, shut down. It’s hard to keep up. It’s hard to be made to feel like you need to. It’s hard to be on 24/7. It’s hard to be happy all the time. You can be with a million people and still feel hurt and lonely.

Here is the thing you don’t. Really you don’t. I can say that to you, to myself and maybe it will stick. Maybe it won’t and that’s ok too.

So for now I will do what I always do. I will get on a back country road go very fast, blare Rage Against the Machine maybe get pulled over. Instead of a ticket get the world’s most awkward hug from the poor state trooper who pulled me over as I was crying telling him I’m just having a really bad day. I will put on my favorite T-shirt. I will goof around and try to copy a You Tube makeup tutorial. I might spend some money on Amazon I don’t have. I will eat a doughnut, pour myself a glass of wine. Hug my daughter, let my dog on my bed.

I will put on my brave face. I will work hard at being happy.

But what I think we all need to remember, myself included is happiness IS hard work, for some people it’s harder than others.

~Caprise~

To Grow I Must Embrace These Changes

To Grow I Must Embrace These Changes

There has been a lot of change going on in my life as of recent. I have never been a big fan of change. This time instead of fighting against the forces that be that are pushing me in new directions I have been embracing them and going with the flow.

One of the many changes in my life is that I have a new relationship in my life. Someone who treats me right, so much so it scares me sometimes. I have never been with a decent guy before, I have always been with the guys that neglect my needs and make me beg for what I need in a relationship. The absence of this struggle has me on my toes waiting for the other shoe to drop. Then I realized it wasn’t coming. Which made me analyze why I was waiting for things to take a turn for the worst. I didn’t feel like I deserved to be treated right, why you may ask? It’s from all the years of justifying others mistreatment of me. Now I am learning how to love myself and to allow someone to love me.

One of the other big change bombs in my life is that I have been officially diagnosed with lupus. I’ve been in an out of the hospital for years, with symptoms that doctors couldn’t explain why I was having them. More recently I’ve been in and out of the hospital more frequently and I finally got a diagnosis. For those who do not know what Lupus is; it is a auto-immune disorder where your body mislabels your healthy cells as invading pathogens and then the body proceeds to attack itself. Specifically, with lupus it attacks skin, organs, muscle and connective tissue. The fact that I live in a colder unstable climate increases the amount of activity this disease has. So being diagnosed has led me too two bigger changes in my life.

I am uprooting my life and moving across country to Texas, for the warmer stable climate with lower cost of living. My last day on the job at the casino as a blackjack dealer is May 6th. The new person in my life is following me and my children down there. I am also immersing myself into homeopathic and herbal healing to find alternatives to heal myself and others.

I am diving head first into all of this, and I’m refusing to allow fear to control the steering wheel. I know that I cannot continue to grow unless I embrace this change and allow myself to be uncomfortable. It’s time to heal old wounds and embrace my new life. 

Always be unapologetically yourself,

Ali